Accessing your own genomic data is a civil right but requires strategies to manage safety
The Genetic Information Nondiscrimination Act of 2008 expanded individuals' access to genetic information by forcing changes to the HIPAA Privacy Rule. These amendments gave Americans a civil right to obtain copies of their own genetic test results stored at HIPAA-regulated laboratories. Researchers describe how civil rights and safety concerns collided after these changes and offers strategies to reconcile the two. more